AI Generated Image
2 Brothers May Only Have Years Left Before Mom’s Rare Disease Kills Them, Too. They’re Not Going Quietly (Exclusive)
AOL.com • • world
Key Points:
- Jordan and Cian Adams face a 99.9% chance of developing frontotemporal dementia (FTD), the same rare disease that killed their mother, and are using endurance challenges to raise awareness and funds for research.
- Through their foundation, FTD Brothers, and social media platforms with over 1 million followers, the brothers have raised nearly $4 million for FTD research since 2025.
- Their stunts include running marathons with a fridge on Jordan’s back and completing 33 marathons in 33 days, aiming to draw attention to the disease and the burden they carry.
- After discovering their genetic risk, the brothers chose to actively advocate and build a legacy rather than wait for the disease to develop, with future plans including climbing Mount Kilimanjaro.
- Despite the emotional toll, including a difficult decision to terminate a pregnancy carrying the mutation, the Adams brothers remain committed to using their time to make a significant impact on FTD awareness and research.
