Dad Went to Bed with a Cough and Died of a Cardiac Arrest. 6 Years Later, the Same Happened to His Son (Exclusive)

AOL.com • January 19, 2026 • health

Key Points:

Amber Selvey from Kent, England, is raising awareness about Alagille Syndrome, a rare genetic condition that caused the deaths of her husband Jason in 2017 and their son Daniel in 2023, six years apart.
Alagille Syndrome affects multiple organs, including the liver and heart, and can present with widely varying symptoms that often go unrecognized without genetic testing, as was the case in Amber’s family.
Despite no known family history initially, genetic testing revealed that three of Amber’s children, her husband, and likely her late father-in-law had the condition, highlighting how it can remain undiagnosed across generations.
Amber emphasizes the need for better awareness, earlier diagnosis, and coordinated care for adults