AI Generated Image
UK girl, 12, underwent six grueling, unnecessary rounds of chemo after misdiagnosis
New York Post • • health
Key Points:
- Faye Condon, a 12-year-old girl from Plymouth, England, underwent six rounds of chemotherapy for Juvenile Dermatomyositis (JDM) after a misdiagnosis by Bristol Children’s Hospital in 2019.
- Despite all tests for JDM being negative, doctors proceeded with treatment, which severely impacted Faye’s childhood, including frequent hospital visits and lack of accessibility adaptations at home.
- The correct diagnosis of Emery-Dreifuss muscular dystrophy (EDMD) was only made years later at Great Ormond Street Hospital through specific genetic testing that Bristol doctors had refused to conduct.
- Faye’s mother alleges that financial concerns and departmental reluctance to take responsibility contributed to the misdiagnosis and delayed proper care.
- EDMD is a rare, incurable disorder affecting muscles and heart, and an earlier diagnosis could have allowed Faye a better quality of life before becoming wheelchair-bound.
