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Woman may be only person in Utah diagnosed with rare, deadly disease
KUTV • • health
Key Points:
- Morgan Hill, a 21-year-old woman from Davis County, Utah, is possibly the only person in the state diagnosed with Niemann-Pick disease, a rare and degenerative condition with no current cure.
- Niemann-Pick disease affects cellular function, disrupting the processing of fats and cholesterol, and presents symptoms similar to Alzheimer’s, dementia, and Parkinson’s diseases.
- Morgan receives biweekly infusions of a new drug in Chicago, which improves her energy and ability to eat independently, alongside other medications costing over $3.5 million annually, mostly covered by insurance.
- Her family emphasizes the difficulty of diagnosis and believes early intervention can improve quality of life, even though the disease remains ultimately fatal.
- Despite her condition, Morgan maintains a positive outlook, expressing happiness and appreciation for life itself.
