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Woman woke up with gym aches, left paralyzed with rare condition
New York Post • • health
Key Points:
- Charlie Wilson, 38, developed sudden paralysis and severe pain caused by extrapulmonary sarcoidosis, a rare condition that leads to swollen tissue patches in organs, but in her case affects limbs, joints, and bones rather than lungs.
- After initial misdiagnoses and multiple hospital stays in Mallorca, she was finally diagnosed following extensive tests, including biopsies and scans, revealing her rare form of sarcoidosis affecting only 1.4% of patients.
- Her treatment involved methotrexate and later adalimumab, which suppresses inflammation but compromises her immune system, causing frequent illness and worsening her hidradenitis suppurativa skin condition.
- Due to her deteriorating health and mobility issues, Charlie moved back to the UK, relying on carers and a wheelchair during flare-ups, significantly limiting her daily activities and social life.
- Charlie describes her condition as a once-in-a-lifetime illness with minimal medical literature available, highlighting the challenges of living with a rare and poorly understood disease.
