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Cystic Fibrosis Took My Sister. I’m Living Life Fully For Her.
HuffPost • • general
Key Points:
- The author recounts the final moments with her older sister Michelle, who battled cystic fibrosis (CF) and passed away at 35, two years short of their predicted life expectancy.
- Despite a lifelong fear of death and illness, the author was inspired by a poem called “The Dash” found among Michelle’s belongings, which emphasizes the importance of how one lives between birth and death.
- Michelle’s courageous approach to life, including embracing vulnerability and pursuing experiences like getting her learner’s permit and flying, motivated the author to confront her own fears and start truly living.
- The author describes overcoming anxiety and taking risks, such as parasailing, as a way to honor Michelle’s memory and live life without regret, despite ongoing health challenges from CF.
- Advances in CF treatment have increased survival rates, but the author remains mindful of health risks, choosing to focus on living fully and embracing each moment.
