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Girl, 12, Underwent 6 Rounds of Unnecessary Chemo After Misdiagnosis, Parents Say Treatment ‘Ruined’ Her Childhood
Yahoo News Canada • • health
Key Points:
- Faye Condon, a 12-year-old girl from Plymouth, England, was misdiagnosed with Juvenile Dermatomyositis (JDM) at age 5 and underwent six rounds of unnecessary chemotherapy over seven years.
- Her mother, Christina Condon, sought a second opinion, leading to a correct diagnosis of de novo Emery-Dreifuss muscular dystrophy (EDMD) type 2 at Great Ormond Street Hospital.
- EDMD causes progressive muscle weakness and stiffening, and Faye is now losing the use of her legs and relies on a ventilator at night; there is no cure for the condition.
- Christina alleges that budget constraints and overlooked test results at Bristol Children's Hospital contributed to the misdiagnosis and unnecessary treatment.
- Christina is pursuing a formal complaint against the hospital, expressing deep disappointment over the impact on Faye’s childhood and health.
