Montgomery County resident who documented life with ALS dies at 37

Montgomery County resident who documented life with ALS dies at 37

Bethesda Magazine • • entertainment

Key Points:

  • Brooke Eby, a Montgomery County resident who documented her life with ALS on social media, passed away at age 37; she was known for her positive attitude and advocacy for ALS research.
  • Diagnosed in March 2022, Eby used platforms like Instagram and TikTok to raise awareness and over $225,000 for ALS research, leveraging her charisma and humor to engage a younger audience.
  • Eby gained national attention, including a ceremonial first pitch at a Baltimore Orioles game and an appearance on NBC’s Today show, which helped amplify her fundraising efforts.
  • In addition to advocacy, Eby launched the B.E. Collection, a line of adaptive clothing designed for younger people with disabilities, collaborating with Silverts to create stylish and functional apparel.
  • Proceeds from her clothing line support Team Gleason, an organization dedicated to ALS patient care and resources, reflecting her commitment to improving life for those living with the disease.

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