We want to hear how Medicaid caregiving cuts are affecting you

Key Points:

• Medicaid home- and community-based services have long enabled millions of disabled and older Americans to live independently rather than in institutions, but recent state and federal changes threaten this system.
• The Trump administration's Medicaid spending cuts, projected to reduce federal funding by nearly $1 trillion over a decade, are part of efforts framed as combating waste and fraud, though critics say they undermine disability programs.
• The Justice Department has shifted its stance on a key Supreme Court ruling that protects disabled individuals' rights to community-based services, raising concerns about future access to care.
• Some states have already imposed wage cuts, caregiver hour caps, and used algorithmic assessments that reduce caregiving, while fraud investigations have disrupted care for families claiming innocence.
• The NBC News series “Disabled and Denied” seeks input from Medicaid home care recipients, family members, workers, and advocates to document the impact of these changes on disabled individuals and their families.